You are here.
A space for people prescribed Berinert®
(C1-esterase inhibitor, Human)
Welcome!
If you have been prescribed Berinert, here is the place to find useful information, support and downloadable resources about your treatment and living with HAE.
You can also find the stories of people sharing their experiences of living with HAE.
Now that you are here, use the panels below to explore what is available and find out more.
where. can you get to know your HAE treatment?
You have been prescribed Berinert, a treatment used to treat acute attacks of hereditary angioedema (HAE) as they happen (or “on-demand”).1,2 You may also be prescribed a dose of Berinert before a medical, dental or surgical procedure to prevent an attack.1,2
To find more information about your treatment and how it works, click here
where. can you hear stories from others about self-administering for HAE?
where. can you learn more about living with HAE?
HAE may not currently have a cure, but that does not mean it cannot be managed successfully by making just a few changes to your life.3 In fact, as you will see from the stories shared here, most people with HAE successfully manage the condition and can continue living a full and active life. It is all about finding what works for you.
Learn more about living with HAE and find tips for how you can build a routine that works for you by clicking here
Hearing stories from others with HAE can be a useful way to learn more about living well with the condition. Remember, if you have any questions about your treatment, always ask for advice from your HAE care team.
there. are lots of ways to feel more prepared for a visit to your HAE care team
Taking a little time to prepare for a visit to the doctor can help make it more productive. But if you are not sure where to start, we have gathered some handy resources that we hope will help you plan ahead.
Find them by clicking here
Don’t let the condition inhibit your life. It hasn’t held me back. And that’s the same message I have for my son who has the condition. Whatever your dreams are, you have to go for them
REFERENCES
- Berinert (1500 IU powder and solvent for solution for injection) Summary of Product Characteristics
- Berinert (500 IU powder and solvent for solution for injection) Summary of Product Characteristics
- HAE UK. Treatment for HAE. [Last accessed February 2023]